PLAN of MARI Helpful Resources

Helpful Resources

We hope this page is a repository of helpful links as you search for local and national disability resources. 
We appreciate our partner organizations who are also doing great work in this space. 

 

National Resources

 

Legal

National Academy of Elder Law Attorneys (NAELA)
https://www.naela.org/

Advocacy

Alexander Graham Bell Association for the Deaf and Hard of Hearing
http://www.agbell.org

American Chronic Pain Association
https://theacpa.org

American Council of the Blind
http://www.acb.org

The ARC of the United States
http://www.thearc.org

The Autism Society of America
http://www.autism-society.org

Brain Injury Association of America
http://www.biausa.org

CHADD – The National Resource on ADHD
http://www.chadd.org

CURE – Citizens United for Research in Epilepsy
https://www.cureepilepsy.org

Disabled American Veterans
https://www.dav.org

Easter Seals
http://www.easterseals.com

The Epilepsy Foundation
http://www.epilepsy.com

March of Dimes
http://www.marchofdimes.org

National Alliance for the Mentally Ill
https://www.nami.org

National Association of Councils on Developmental Disabilities
http://nacdd.org

National Down Syndrome Society
http://www.ndss.org

National Fragile X Foundation
https://fragilex.org

National Gaucher Foundation
http://www.gaucherdisease.org

National PLAN Alliance
http://nationalplanalliance.org/

Prader-Willi Syndrome Association (USA)
http://www.pwsausa.org

Rettsyndrome.org
https://www.rettsyndrome.org

United Cerebral Palsy
http://www.ucp.org

United Spinal Association
http://www.spinalcord.org

Government

Social Security Administration
https://www.ssa.gov

Medicare
https://www.medicare.gov

General
https://www.mattressclarity.com/blog/how-to-overcome-down-syndrome-sleep-challenges/

 

Massachusetts Resources

 

Legal

Disability Law Center, Inc.
http://www.dlc-ma.org

Massachusetts Advocates for Children
http://massadvocates.org

Massachusetts Bar Association – Lawyer Referral Service –
http://www.masslawhelp.com/estate-planning.aspx

Massachusetts Guardianship Association
http://www.massguardianshipassociation.org

Mass Legal Help
http://www.masslegalhelp.org/disability

MassNAELA
https://massnaela.com

Probate and Family Court Department
http://www.mass.gov/courts/court-info/trial-court/pfc

Volunteer Lawyers Project of the Boston Bar Association
https://www.vlpnet.org

Advocacy

The ARC of Massachusetts
http://thearcofmass.org

Centers for Independent Living
https://www.mass.gov/independent-living-centers

Massachusetts Advocates Standing Strong
https://ma-advocates.org

Massachusetts Families Organizing for Change
http://mfofc.org

Massachusetts Medical Orders for Life-Sustaining Treatment
http://www.molst-ma.org

New England ADA Center
http://www.newenglandada.org

Government 

Executive Office of Elder Affairs
http://www.mass.gov/elders/healthcare

Executive Office of Health & Human Services
http://www.mass.gov/eohhs/gov/departments/masshealth

Massachusetts Attorney General’s Office
http://www.mass.gov/ago/consumer-resources/consumer-information/scams-and-identity-theft

Mass 211
http://mass211.org

Massachusetts Commission Against Discrimination
http://www.mass.gov/mcad

Massachusetts Department of Housing and Community Development
https://www.mass.gov/orgs/housing-and-community-development

Massachusetts Developmental Disabilities Council
http://www.mass.gov/anf/employment-equal-access-disability/oversight-agencies/mddc

Massachusetts Office on Disability
http://www.mass.gov/anf/employment-equal-access-disability/oversight-agencies/mod

Massachusetts Rehabilitation Commission
https://www.mass.gov/orgs/massachusetts-rehabilitation-commission-0

Massachusetts – Section 8 Housing Choice Voucher Centralized Waiting List
http://www.section8listmass.org

MassHealth
http://www.mass.gov/eohhs/gov/departments/masshealth

 

Rhode Island Resources

 

Legal

Help RI Law: Rhode Island Legal Services
https://www.helprilaw.org/

Rhode Island Legal Services
http://www.rils.org/contact.cfm

Rhode Island Disability Law Center, Inc.
http://www.ridlc.org/

RI Elder Info
https://rielderinfo.com/legal-help-for-seniors-in-ri/ 

Advocacy

Advocates in Action Rhode Island
http://www.advocatesinaction.org/

The ARC of Rhode Island
https://thearc.org/chapter/the-arc-rhode-island-family-advocacy-network/

The Brain Injury Association of Rhode Island, Inc.
https://biari.org/

Community Provider Network of Rhode Island (CPNRI)
https://www.cpnri.org/

Down Syndrome of Rhode Island
http://www.dssri.org/

New England ADA Center
http://www.newenglandada.org
Hotline: 1 (800) 949-4232 (V/TTY)

Paul V. Sherlock Center on Disabilities at Rhode Island College
http://www.ric.edu/sherlockcenter/advocate.html

Rhode Island Advocacy for Children
https://riadvocacyforchildren.org/

Rhode Island Coalition for Children and Families
https://www.riccf.org/

Rhode Island Parent Information Network
http://www.ripin.org/

Rhode Island Rights and Access Coalition
https://ridrac.org/

United Way of Rhode Island
https://www.uwri.org/2-1-1/

Government 

Rhode Island Attorney General
http://www.riag.ri.gov/

Rhode Island Developmental Disabilities Council
http://www.riddc.org/

 

Resources for Seniors

Guide to Home Modifications to Prevent Falls
https://www.bigrentz.com/how-to-guides/guide-home-modifications-prevent-seniors-falling

Handling Debt for Older Adults
https://www.annuityfreedom.net/financial-literacy/seniors-debt/

Fall Prevention
https://acl.gov/FallsPrevention

How to Safely Pick up a Senior After a Fall
https://www.agingcare.com/articles/pick-up-a-senior-after-a-fall-170447.htm

Legal Guide for Seniors
https://www.justgreatlawyers.com/legal-resources-considerations-seniors-special-needs

COVID Resources for Seniors
https://www.ncoa.org/ncoa_acf/covid-19-resources-for-older-adults/